( Log Out /  Based on the “spoon theory” by Christine Miserandino, the analogy of spoons can help explain what it feels like to be chronically ill. Each task you do costs a certain number of spoons, so you have to choose carefully which activities you choose to spend them on. I quickly grabbed every spoon on the table; hell I grabbed spoons off of the other tables. Basically, she says if you have a chronic condition, you begin your day with a certain number of spoons, which represent units of energy. Thank you to them for having me, and to Stealth Awareness for making the video. Change ), You are commenting using your Facebook account. It does so by subconsciously controlling major functions including, but not limited to: 5 … After an hour in the store today, I was wiped out — just like I was when reached the 3.65-mile mark the other day. This site is not intended to provide medical diagnosis, advice, or treatment. She came up with the theory as she tried to describe to a friend what it's like to be sick with an invisible illness. This video is from the speaking appearance at the Piedmont, NC LFA on September 11, 2010. See more ideas about spoon theory, fibromyalgia, chronic illness. At that moment, the spoon theory was born. Ask your healthcare provider to help you in interpreting any information in this site, or in applying the information to your own individual case. Christine Miserandino, who has lupus, came up with the model to explain to her friend what it’s like to have a chronic condition or illness. It describes perfectly this … In short, having POTS presents more challenges than a … At that moment, the spoon theory was born. Who we are What's in our name Folder: Chronic Illness. Never rely on information from this website in place of professional medical advice. I just sit there and wonder, how do they do that? The author of the Spoon Theory has chronic fatigue syndrome and lupus - POTS also overlaps with chronic fatigue syndrome. I quickly grabbed every spoon on the table; hell I grabbed spoons off of the other tables. Great minds and all that or just used up all my spoons reading this. The Spoon Theory. Proudly created with Wix.com. Most days I don't have a full set but damn is it hard to ration them out. I don’t want everyday activities to wear me out as much as they do. POTS is a type of dysautonomia, or autonomic dysfunction. Reliance on information from this site is solely at your own risk. Postural Orthostatic Tachycardia Syndrome (POTS). How The Spoon Theory Explains What It’s Like to Live with Chronic Illness You’ve probably read the term before: spoonies. Posted in Dysautonomia, Uncategorized Tagged Autonomic Dysfunction, Dysautonomia, Lifeguarding, Postural Orthostatic Tachycardia Syndrome, POTS, Relationships, Spoon Theory … It’s exactly why I started this endeavor, and it’s why I need to keep at it. “The spoon is from the ‘spoon theory,’ the blue and green are for idiopathic intracranial hypertension and the zipper is for Chiari. Too exhausted to cook? I looked at her in the eyes and said “Here you go, you have Lupus”. It’s a nickname for people with chronic illness, that unites individuals with all kinds of health problems on social media. Change ), You are commenting using your Google account. The Spoon Theory is especially useful if you have any conditions listed below: Epilepsy; Diabetes; Lupus; Lyme disease; Migraines; Fibromyalgia; Depression; PTSD; Herniated disc (or any back injury-related issues) What’s great about the Spoon Theory is that it doesn’t just help regular people understand your limitations. This is me reading “The spoon theory” live at a Lupus Symposium. All orders are custom made and most ship worldwide within 24 hours. As I said in my last post, the fatigue I get with POTS is more than being tired; it drags me down and renders me nonfunctional. She looked at me slightly confused, as anyone would when they are being handed a bouquet of spoons. EDS POTS Spoon Theory Blog Shop Donate Contact Welcome to Ineffably Co. “ The Spoon Theory ”, a personal story by Christine Miserandino, is popular among many people dealing with chronic illness. ( Log Out /  0. Please … Blog Shop Donate Contact 0. Spoon Theory By Ziggie. I’m using this space to document things as honestly as I can so that when I do reach the day when I have more spoons, I can look at posts like this and see how far I’ve come. Many EDSers use the “Spoon Theory” to explain their fatigue and limitations due to the acute-chronic pain cycle.. BBC News presents a series on “insights into disabled life” which shares the “Spoon Theory” with the public audience. The Spoon Theory is a teaching tool, and as such can be both critiqued and altered by individuals to meet their interests and needs. The Spoon Theory...by Christine Miserando, © 2023 by  THE PUB. Well, it’s not that simple. She looked at me slightly confused, as anyone would … I quickly grabbed every spoon on the table; hell I grabbed spoons off of the other tables. Blue Awareness Bracelet Rubber The Spoon Theory POTS | Etsy This Blue Rubber Awareness Bracelet, with dangling silver spoons, represents support and awareness for the following causes: (The 2 mini silver spoon charms represent "The Spoon Theory". Thanks for dropping by, we’re so happy you’re here! The text ‘I have, I can, I will’ is a reminder I’ve made it through and will continue to make it through this battle.” ... (POTS), and turquoise is the awareness color! In a blog titled “The Spoon Theory,” Christine Miserandino describes how she showed her friend what it’s like to have lupus. This site and its links are for educational purposes only. Spoon Theory. The autonomic nervous system controls a wide variety of the body’s involuntary functions, including respiration, digestion and, yes, heart rate and blood pressure. It’s discouraging to find myself leveled by tasks that should be easy. She came up with the theory as she tried to describe to a friend what it's like to be sick with an invisible illness. ... Additionally, I am looking forward to posting more updates and info about chronic illness related topics such as spoon theory, navigating academic contexts, etc. Grocery stores are challenging because there’s about as much standing as there is walking, and while I struggle with being upright in general, standing still is hardest. In short, it visualizes the amount of energy someone has in a day as a number of spoons. 20 notes. You may have heard of it or you might have not. I was feeling extra bad about that today when I remembered the “spoon theory.”. I’m going to wrap this post up, but I need to be clear about something: This blog is not a place I come to complain; I really don’t think I have it all that bad. Change ), You are commenting using your Twitter account. Developed in 2003 by Lupus patient Christine Miserandino, the spoon theory is a simple analogy designed to help healthy people understand the ways in which chronically ill/disabled people expend energy. She has been an advocate, blogger, and … Back. When you run out of spoons, that’s it: You have no energy left to do anything else. Nor should you rely on such information for recommending a course of treatment. Helping Someone Navigate a POTS Diagnosis. The ANS is absolutely vital to keeping ones body working properly, as it is a regulatory system that helps maintain homeostasis. In fact, you don’t even have to specifically use spoons for the Spoon … The Spoon Theory … Blue Awareness Bracelet (Cotton) - The Spoon Theory - POTS, Dysautonomia, ARDS, Arthritis, Chronic Fatigue, & More ChronicallyCaring. Open Menu Close Menu. #pots #spoonie #fuck you pots #spoon theory #postural orthostatic tachycardia syndrome #pots problems #chronic illness #chronic fatigue #chronic pain #spoonie lols. I’m only a few days into my quest to beat POTS, and I’ve already encountered some hurdles, not the least of which is fatigue. (If you don’t know what we mean by low on spoons, check out the Spoon Theory.) POTS. You guys have been asking for this for a LONG time. The way they are treating my POTS currently is the start of a heart medication, which has already lowered my resting heart rate considerably, and through saline infusions. Spoon Theory. Maybe it’s is a sign that your spoon is just crapped out and wants a rest and take out food for a week is a necessity! Create a free website or blog at WordPress.com. Running low on spoons? The information provided in this site, is not meant to replace your healthcare provider. We ship USPS $ 5.50 flat rate no matter how many items you where-are-my-spoons. I even pace when I brush my teeth because I need to keep moving. We would like to show you a description here but the site won’t allow us. I looked at her in the eyes and said “Here you go, you have Lupus”. "Spoonies" Explained The Spoon Theory by Christine Miserandino www.butyoudontlooksick.com "My best friend and I were in the diner, talking. During my many searches for answers, I would often come across references to "spoonies" but was never exactly sure what it meant. Below, I share a few adaptations of the Spoon Theory and a couple critiques, as well. Postural Orthostatic Tachycardia Syndrome (POTS) is a form of dysautonomia-- or the abnormal functioning of the Autonomic Nervous System (ANS).. 9 comments: Unknown November 18, 2014 at 6:44 PM. Here are some meal ideas for inspiration from a fellow dysautonomia warrior. When you start your day with a small number of spoons, you have to make wise decisions to ensure you spend your energy on the most important things. This upsets me for a number of reasons: I feel like I’m slacking off by not hitting the gym every day. Follow. The author of the Spoon Theory has chronic fatigue syndrome and lupus - POTS also overlaps with chronic fatigue syndrome. She looked at me slightly confused, as anyone would … I don’t want to have a finite number of spoons. ( Log Out /  Spoon theory is a metaphor that is used to describe the amount of mental or physical energy a person has available for daily activities and tasks. That’s ridiculous. Spoon theory is a well-known concept for people struggling with a chronic illness. Please stay awhile and take a look around. Trying to balance my new mission with my daily obligations has been difficult. People with dysautonomia have a lot of different dietary restrictions, so you can modify these ideas as needed. I don’t want to have to choose a chore over what’s going to help my POTS symptoms improve. As I said in my last post, the fatigue I get with POTS is more than being tired; it drags me down and renders me nonfunctional. Medical information is always changing. The author of the Spoon Theory has chronic fatigue syndrome and lupus - POTS also overlaps with chronic fatigue syndrome. At that moment, the spoon theory was born. She has a website called butyoudontlooksick.com. These posters will make a perfect “get well gift, or friendship/ I understand gift.” We also think it would make a perfect addition to any doctor’s office, or support group meeting room. Fill in your details below or click an icon to log in: You are commenting using your WordPress.com account. ( Log Out /  She has a website called. On days I don’t have enough spoons left for exercise, I get angry with myself. Accepting There is Nothing Wrong with Needing a Plan C... 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Change ). High quality Spoon Theory gifts and merchandise. Labels: dysautonomia, energy, fatigue, hobbies, Mestonin, Myasthenia Gravis, POTS, Spoon Theory, Spoonie, Spoons, strength, symptoms. I’m only a few days into my quest to beat POTS, and I’ve already encountered some hurdles, not the least of which is fatigue. As usual, it was very late and we were eating French fries with gravy. (Note: I don’t think of myself as sick, but I will write more on that in another post.) I would gladly donate some of my spoons. The Spoon Theory. Inspired designs on t-shirts, posters, stickers, home decor, and more by independent artists and designers from around the world. Like normal girls our age, we spent a lot of time in the diner while in college, and most of the time… She has been an advocate, blogger, and speaker for those with lupus for over 18 years. I’m amazed watching people do things. Back. August 17, 2016 August 17, 2016 1spoonatatime, Advocacy, Chronic illness, Dysautonomia, Expectations, Invisible illness, POTS, Uncategorized Leave a comment Advocacy Chronic illness EDS Ehlers Danlos Ehlers danlos syndrome Postural Orthostatic Tachycardia Syndrome POTS Spoon theory Spoonie Spoonies Lol first that came to mind was the spoon theory too. Apr 19, 2016 - Explore Jess Dodson's board "Spoon Theory", followed by 115 people on Pinterest. We are not liable or responsible for any advice, treatment, diagnosis or other information you obtain through this site. I looked at her in the eyes and said “Here you go, you have Lupus”. She has been an advocate, blogger, and speaker for those with lupus for over 18 years. Current Page: Home Folder: Our Story. Ehlers-Danlos & the “Spoon Theory” get attention on BBC News. The information on this site or its links should not be considered current, complete or exhaustive. Save your Spoons Charm, Spoonie Charm, Chronic illness, Fibromyalgia, Chronic Fatique, Spoon Theory, Lupus, Message Charm Silvertone #27-21 Quantity: 1 piece Size: 25mm Item is in stock and ships in 1-3 business days from Arizona. Now you can purchase small and large poster prints of “The Spoon Theory” from our Online Store! Today, the spoon I wanted to use for exercise had to be spent on a trip to the grocery store. Each thing you do costs a spoon, leaving you with fewer as the day goes on. She came up with the theory as she tried to describe to a friend what it's like to be sick with an invisible illness. 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From shop ChronicallyCaring. I have tried to describe the theory to others and it never comes out as well when I tell it - so be sure to read. It’s no surprise that exertion provokes it, so along with making time for exercise, I need to set aside time to recover before I move on with my day.